MCL CDEs

MCL Common Data Elements

Common Data Elements (CDEs) are standardized terms for the collection and exchange of data. For further information, please click here to see the NCI CBIIT CDE description page.

 You must collect all the CDES for each relevant group.

CDE Group
PI Contract
Informatics Contact
CDE Spreadsheet
Link to caDSR
Core
        
Core   Kristen Anton MCL Core CDEs (DRAFT)4/27/2017  
Working Groups
        
Genomics Janet Stein/Olivier  Harismendy Maureen Colbert MCL Core Genomics (DRAFT)5/19/2017  
      Experiment Experiment
      Sequencing Library Seq Library
      Sample Sample
Imaging Deni Aberle Heather Kincaid

MCL Lung Imaging Atlas (DRAFT) 9/27/2017

MCL Core Imaging (DRAFT) -In Progress

  
Pathology Sandy Borowsky Kristen Anton In Progress  
Organs
        
Breast   Maureen Colbert MCL Core Breast (DRAFT)5/19/2017  
Lung Pierre Massion Heather Kincaid MCL Core Lung (DRAFT)5/19/2017  
Pancreas Anirban Maitra Heather Kincaid In Progress  
Prostate Angelo DeMarzo/Jim Maureen Colbert MCL Core Prostate (DRAFT)5/19/2017  
Specimens        
Biospecimens   Kristen Anton MCL Core Biospecimens (DRAFT)5/19/2017  
Catalog and Archive Service
        
LabCAS   Heather Kincaid

MCL Core LabCAS Metadata CDEs (DRAFT) 6/1/2017

MCL LabCAS Data Upload Instructions

  
PCA Pilot Project
        
 PCA Pilot Project     Core, Genomics and Biospecimen PCA CDEs - Draft 

Pathology (Breast, Lung, Prostate and Pancreas) PCA CDEs - Draft

  

 

To get started using the MCL CDEs:

  1. Download the MCL Core spreadsheet. 
  2. Download the appropriate working group spreadsheet(s)
  3. Download the appropriate organ spreadsheet(s). 
 
You must collect all the MCL CDEs related to any of the data you are collecting.
 

MCL Core CDEs

The Core CDEs contain information that all MCL studies should use. Examples of core CDEs are questions on patient demographics, family and medical history, previous cancers, smoking and alcohol use.

 

MCL Biospecimen CDEs

The CDE team has developed a first draft of biospecimen CDEs.
It is critical that these data standards meet your needs.  Please review the attached spreadsheet and give us feedback.
There are roughly 75 CDEs.  The left side of the spreadsheet will be most relevant for you.
  

Organ and Working Group CDEs

Each working and organ group has a specific set of CDEs. For example, the genomics CDEs will contain questions on sequencing experiments, sample characteristics, library and platform details.  The prostate CDEs will contain questions on Gleason scores, AJCC staging, and PSA test results. 

 

 

Note: You will need more than one spreadsheet to create all CDEs for your study. For example, if you are collecting genomic data from breast cancer studies, you will need the Core, Breast, and Genomics CDE spreadsheeets. You can also include any additional data that is specific to your site, study,  or institution.

If you need help downloading the spreadsheets, deciding which CDEs to use, or any other CDE related help, please contact any of the Informatics CDE Contacts listed in the table above.